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Letter: Rather than politicizing Down syndrome, the Legislature should help people with disabilities

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(Steve Griffin | The Salt Lake Tribune) Four-year-old Ella Warner, left, shares a chip with her three-year-old friend Finn Merkley as Rep. Karianne Lisonbee, R-Clearfield talks about legislation that would enact important protections for children who have Down syndrome during a news conference at the Utah State Capitol in Salt Lake City Monday January 22, 2018. Both children, who have Down Syndrome, attended the news conference with their parents Natalie Warner and Justin Merkley. Amber Merkley, Finn's mother, spoke during the event.

I find it unconscionable that Utah’s Legislature is using people with Down syndrome to further its own agenda in restricting choice.

I find it intolerable that in pushing this agenda the legislation diminishes the value of people with Down syndrome, contrary to the implied purpose.

My son has Down syndrome and he does not need the “blessing” of legislators to feel better or recognize, “Why, yes, I’m a valued member of society.” My son doesn’t need to be held up as an example that actually reinforces stereotypes. My son does not need to be at the center of a proposal that really has nothing to do with him.

If the Legislature really cares about people with disabilities, it would do something to make my son part of society through actions that encourage inclusion in education and the workplace, and promote nondiscriminatory programs. Or better yet, it would do something about expanding Medicaid to promote a healthier and thriving future for everyone, regardless of race, color, creed, gender, sexual orientation, national origin, genetics and abilities.

Unless legislators plan to give my son a life, they shouldn’t act as if they’re trying to protect it.

Christine Fraizer, Millcreek