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But he declined rapidly. "In December they told us, ‘There’s nothing we can do for your son,’" said Jane.
The family arranged to fly Brian home for blood transfusions at Dixie Regional Hospital. "We wanted him to have enough time to say goodbye to family and friends," said Jane. "He was able to spend Christmas Eve at home."
Ceremony to honor Brian ScottBrian Scott’s family hasn’t finalized funeral arrangements but will hold a ceremony Saturday at 10 a.m. at the LDS Church stake center in La Verkin. The public is welcome.
Brian Scott’s death comes as a growing number of states move to legalize marijuana for medicinal purposes. Marijuana remains illegal in Utah, but lawmakers are considering making a “hemp extract” available to children with epilepsy.
Slow-growing plant yields marijuana designed for kids, Nov. 10, 2013
Jane struggles with moments of doubt, but said her son stood firm in his resolve. "He told me, ‘Mom, don’t you go there. We both decided this is what we were going to do,’" she said.
Doctors at Oregon Health & Science University tested more than 100 drugs on his blood cells and none showed promise, Jane said. "He had a stubborn [cancer] that outsmarted all the chemo."
Brian was an inspiration even to those who didn’t know him personally.
"He fought valiantly," said Abraham Thiombiano, a St. George real estate specialist who hosted a dance that raised $1,000 for Brian. "The one thing I take from him: He’s a fighter whether on the football field or in life."
Johnson said he was a "hero in all of southern Utah." Her daughter, Jannica, was just 9 when Scott was first being treated at Primary Children’s.
Jannica came up with the idea for a bake sale, and she and her mother made muffins and rolls and hot chocolate, raising $300. When Jannica sent Brian the money, he sent back a thank-you note, which she treasured.
"She says a prayer for him every night. She would check (his mother’s) blog every week." Johnson said. "It’s going to be hard to tell her."
Tribune reporter Bubba Brown contributed to this story.
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