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Neighborhood fundraiser planned for child with mystery ailment

Published April 30, 2009 12:01 am

Community » Family wants to take baby to Boston for consultation.
This is an archived article that was published on sltrib.com in 2009, and information in the article may be outdated. It is provided only for personal research purposes and may not be reprinted.

Friends and neighbors will rally next month to raise money and offer support for the ongoing battle of 10-month-old Maggie Agnew.

The child weighs 10 pounds, which is seven pounds less than the lowest weight expected for a 10-month-old child, said her mother, Michelle Agnew.

Maggie suffers from myriad health problems, her mother said.

Michelle Agnew said her daughter was born with bad color and wasn't breathing properly because of an undersized airway.

Despite being in the neonatal intensive care unit for about five days, Maggie kept turning blue.

Doctors performed a tracheotomy to help her breathe. The girl was also born with three holes in her heart, of which two have healed. She still suffers from an irregular heartbeat and is losing muscle mass and muscle function.

The girl has outgrown her spinal cord's capability and faces an operation involving a possible partial skull removal in June, said family friend Sara Boss.

The family is also frustrated because local doctors haven't determined the source of the child's illness.

"We're not getting any answers from out here," said Michelle Agnew. The family hopes to get the child to Boston specialists at the end of May.

Mentally, Maggie acts her age, said her mom. But she lacks endurance and easily tires.

Because she uses a ventilator, Maggie doesn't make noise and cannot crawl.

Friends and neighbors are hosting a two-day yard and bake sale to raise money for the sick girl.

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To attend the fundraiser

The fundraiser is May 15-16 at 1000 East and 3100 South. Anyone wanting to donate items for the yard and bake sale, should contact Sara Boss at 801-463-6612.

The sale runs 1-7 p.m. Friday and 9 a.m. -3 p.m. Saturday.

"Hope for Maggie" is the sale's theme.

To donate

There is an account set up under Maggie Agnew's name at the America First Credit Union, 3190 S. 1300 East.