(Scott Sommerdorf | The Salt Lake Tribune) Jamie Hartley, 34, paints at her home in Alpine to distract herself from the pain of her rare and deadly skin disorder. Hartley is a Utah delegate to the Democratic National Convention. Because of her disorder, health care is her top issue. She paints to distract herself from the pain in her home in Alpine, Utah. (Scott Sommerdorf | The Salt Lake Tribune) Jamie Hartley, 34, paints at her home in Alpine to distract herself from the pain of her rare and deadly skin disorder. Hartley is a Utah delegate to the Democratic National Convention. Because of her disorder, health care is her top issue. “I wanted to be a voice for other people like me who have a severe disability, who are too sick to get out, and say we need affordable health care,” she said. (Scott Sommerdorf | The Salt Lake Tribune) Jamie Hartley, 34, is a Utah delegate to the Democratic National Convention in Charlotte, N.C. Her hands are bandaged due to a rare and deadly skin disorder. Because of that, health care is her top issue. She paints to distract herself from the pain in her home in Alpine, Monday, August 13, 2012.