EPILEPSY - The Salt Lake Tribune http://www.sltrib.com/feeds/topics/EPILEPSY News from The Salt Lake Tribune en-us webmaster@sltrib.com (Webmaster) Utah families celebrate passage of cannabis ‘Charlee’s Law’ http://www.sltrib.com/sltrib/news/57728706-78/cannabis-utah-law-oil.html.csp <div class="hnews hentry item"> <h4><a class="url entry-title" href="http://www.sltrib.com/sltrib/news/57728706-78/cannabis-utah-law-oil.html.csp">Utah families celebrate passage of cannabis ‘Charlee’s Law’</a></h4> <span class="author vcard"><span class="fn">By kirsten stewart</span></span> <span class="source-org vcard"><span class="org fn"> The Salt Lake Tribune</span></span> <h5><span class="updated" title="2014-03-26T10:13:43.835-06:00">Updated Mar 26, 2014 10:13AM MDT</span></h5> <div class ="entry-content">Utah’s hemp supplement bill, better known as “Charlee’s Law,” is a technical piece of legislation, packed with a lot of “legalese,” said sponsor Rep. Gage Froerer at the governor’s ceremonial signing of the law on Tuesday. But it’s a symbol of compassion for parents who have exhausted all medical remedies for their children, and a promise of hope for a better future, he said. “And number one it’s about trust,” Froerer said. “The state of Utah is willing to trust the parents of this state in mak...</div> <h5><a rel="item-license" href="http://www.sltrib.com/pages/privacy"> Copyright 2013 The Salt Lake Tribune. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.</a></h5> </div> 57728706@www.sltrib.com Wed, 26 Mar 2014 10:13:43 MDT Parents group: How to comply with new Utah cannabis law http://www.sltrib.com/sltrib/news/57730464-78/utah-cannabis-department-epilepsy.html.csp <div class="hnews hentry item"> <h4><a class="url entry-title" href="http://www.sltrib.com/sltrib/news/57730464-78/utah-cannabis-department-epilepsy.html.csp">Parents group: How to comply with new Utah cannabis law</a></h4> <span class="author vcard"><span class="fn">By Kirsten Stewart </span></span> <span class="source-org vcard"><span class="org fn"> The Salt Lake Tribune</span></span> <h5><span class="updated" title="2014-03-25T19:53:36.209-06:00">Updated Mar 25, 2014 07:53PM MDT</span></h5> <div class ="entry-content">Charlee’s Law doesn’t take effect until July 2, 2014. Until then, here are steps and tips from Hope 4 Children With Epilepsy. Before applying for a hemp registration card, patients must: Have tried three treatments for epilepsy under the direction and documentation of a neurologist. Obtain a letter of recommendation from your neurologist affirming that you have intractable epilepsy and that you may benefit from treatment with hemp extract. You will need a copy of this statement, and the neuro...</div> <h5><a rel="item-license" href="http://www.sltrib.com/pages/privacy"> Copyright 2013 The Salt Lake Tribune. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.</a></h5> </div> 57730464@www.sltrib.com Tue, 25 Mar 2014 19:53:36 MDT Editorial: Legislature does the right thing about cannabis oil http://www.sltrib.com/sltrib/opinion/57672075-82/oil-cannabis-utah-federal.html.csp <div class="hnews hentry item"> <h4><a class="url entry-title" href="http://www.sltrib.com/sltrib/opinion/57672075-82/oil-cannabis-utah-federal.html.csp">Editorial: Legislature does the right thing about cannabis oil</a></h4> <h5><span class="updated" title="2014-03-13T21:57:02.479-06:00">Updated Mar 13, 2014 09:57PM MDT</span></h5> <div class ="entry-content">Utah exceptionalism, like American exceptionalism, is a good thing to have when it is employed in the service of the weak, the sick, the desperate. Too often, the impulse felt by Utah politicians to thumb their noses at federal law, federal officials, even the Constitution of the United States, surfaces only to be used on behalf of the rich, the retrograde, the exploiters of public lands. But, in consciously and boldly stepping away from the federal government’s irrational and heartless refusal...</div> <h5><a rel="item-license" href="http://www.sltrib.com/pages/privacy"> Copyright 2013 The Salt Lake Tribune. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.</a></h5> </div> 57672075@www.sltrib.com Thu, 13 Mar 2014 21:57:02 MDT Cannabis oil bill aimed at helping those with epilepsy sent to governor http://www.sltrib.com/sltrib/politics/57676692-90/oil-charlee-cannabis-bill.html.csp <div class="hnews hentry item"> <h4><a class="url entry-title" href="http://www.sltrib.com/sltrib/politics/57676692-90/oil-charlee-cannabis-bill.html.csp">Cannabis oil bill aimed at helping those with epilepsy sent to governor</a></h4> <span class="author vcard"><span class="fn">By Lee Davidson</span></span> <span class="source-org vcard"><span class="org fn"> The Salt Lake Tribune</span></span> <h5><span class="updated" title="2014-03-13T23:58:06.672-06:00">Updated Mar 13, 2014 11:58PM MDT</span></h5> <div class ="entry-content">The House gave final passage Thursday to what it now calls “Charlee’s Law,” a bill to allow use of nonintoxicating cannabis oil by Utahns with untreatable epilepsy. HB105 passed on a 58-9 final vote, and was sent to Gov. Gary Herbert for his signature. Watching it pass was Charlee Nelson of West Jordan, a 6-year-old who might have benefitted from cannabis oil, but is near death. She and her parents, Catrina and Jeff Nelson, were invited onto the House floor and applauded by members. Rep. Gage Fr...</div> <h5><a rel="item-license" href="http://www.sltrib.com/pages/privacy"> Copyright 2013 The Salt Lake Tribune. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.</a></h5> </div> 57676692@www.sltrib.com Thu, 13 Mar 2014 23:58:06 MDT Parents grieve dying 6-year-old, a candidate for cannabis http://www.sltrib.com/sltrib/news/57660495-78/charlee-oil-catrina-cannabis.html.csp <div class="hnews hentry item"> <h4><a class="url entry-title" href="http://www.sltrib.com/sltrib/news/57660495-78/charlee-oil-catrina-cannabis.html.csp">Parents grieve dying 6-year-old, a candidate for cannabis</a></h4> <span class="author vcard"><span class="fn">By Kirsten Stewart</span></span> <span class="source-org vcard"><span class="org fn"> The Salt Lake Tribune</span></span> <h5><span class="updated" title="2014-03-11T19:27:13.568-06:00">Updated Mar 11, 2014 07:27PM MDT</span></h5> <div class ="entry-content">West Jordan • No longer needed, an oxygen tank sits idle on the living room floor. Nearby is a box of purple bracelets that Charlee Nelson’s family made to raise awareness of Batten Disease and to collect donations to cover the 6-year-old’s medical costs. Across the room, hanging from the stroller Catrina and Jeff Nelson had to buy for their once active, gregarious child is a burial dress. “My [oldest] daughter was recently baptized and we were shopping for her when I saw this and thought, ‘This...</div> <h5><a rel="item-license" href="http://www.sltrib.com/pages/privacy"> Copyright 2013 The Salt Lake Tribune. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.</a></h5> </div> 57660495@www.sltrib.com Tue, 11 Mar 2014 19:27:13 MDT Cannabis oil may be coming to Utah as Senate passes bill http://www.sltrib.com/sltrib/politics/57666171-90/oil-cannabis-bill-charlee.html.csp <div class="hnews hentry item"> <h4><a class="url entry-title" href="http://www.sltrib.com/sltrib/politics/57666171-90/oil-cannabis-bill-charlee.html.csp">Cannabis oil may be coming to Utah as Senate passes bill</a></h4> <span class="author vcard"><span class="fn">By Kirsten Stewart </span></span> <span class="source-org vcard"><span class="org fn"> The Salt Lake Tribune</span></span> <h5><span class="updated" title="2014-03-11T22:27:14.803-06:00">Updated Mar 11, 2014 10:27PM MDT</span></h5> <div class ="entry-content">A bill that would allow compassionate use of nonintoxicating cannabis oil by Utahns with untreatable epilepsy passed the Senate Tuesday by a wide margin, despite reservations some senators have about the oil’s safety and long term benefits. Senators applauded families seated in the gallery and they recognized Charlee Nelson of West Jordan, a 6-year-old who might have benefitted from cannabis oil, but is near death. Charlee and her parents, Catrina and Jeff Nelson, were invited onto the Senate f...</div> <h5><a rel="item-license" href="http://www.sltrib.com/pages/privacy"> Copyright 2013 The Salt Lake Tribune. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.</a></h5> </div> 57666171@www.sltrib.com Tue, 11 Mar 2014 22:27:14 MDT House passes bill to get cannabis oil to seizure-stricken kids http://www.sltrib.com/sltrib/politics/57627665-90/bill-cannabis-department-epilepsy.html.csp <div class="hnews hentry item"> <h4><a class="url entry-title" href="http://www.sltrib.com/sltrib/politics/57627665-90/bill-cannabis-department-epilepsy.html.csp">House passes bill to get cannabis oil to seizure-stricken kids</a></h4> <span class="author vcard"><span class="fn">By kirsten stewart</span></span> <span class="source-org vcard"><span class="org fn"> The Salt Lake Tribune</span></span> <h5><span class="updated" title="2014-03-03T22:43:26.561-06:00">Updated Mar 3, 2014 10:43PM MDT</span></h5> <div class ="entry-content">Utah’s House gallery, filled with parents of children with epilepsy, erupted into applause Monday following passage of a bill that would allow their trial use of non-intoxicating, seizure-stopping cannabis oils. The breach of decorum drew a reprimand from House Speaker Becky Lockhart, who, nevertheless, landed on the “yes” side of the 62-11 vote to approve HB105. Families spilled from the chambers exchanging tearful, congratulatory hugs and flowers. The measure now heads to the Senate where i...</div> <h5><a rel="item-license" href="http://www.sltrib.com/pages/privacy"> Copyright 2013 The Salt Lake Tribune. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.</a></h5> </div> 57627665@www.sltrib.com Mon, 03 Mar 2014 22:43:26 MDT